Parental and Medical Classification of Neurodevelopment in Children Born Preterm (Richter 2025)
pubmed.ncbi.nlm.nih.gov/39786567
How to measure patient and family important outcomes in extremely preterm infants: A scoping review (Synnes, 2024) https://pubmed.ncbi.nlm.nih.gov/38578009/
Partnering With Parents to Change
Measurement and Reporting of Preterm Birth Outcomes (Pearce 2024)
pubmed.ncbi.nlm.nih.gov/39354888/
Integrating parent voices into research at the extremes of prematurity: what are we doing and where should we go? (Callahan 2024)
researchgate.net/publication/385858030
Redefining neurodevelopmental impairment: perspectives of very preterm birth stakeholders (Synnes 2023)
mdpi.com/2227-9067/10/5/880
Pulmonary important outcomes after extremely preterm birth: Parental perspectives (Thivierge 2023)
pubmed.ncbi.nlm.nih.gov/36815277
Fragility and resilience: parental and family perspectives on the impacts of extreme prematurity (Janvier 2023)
pubmed.ncbi.nlm.nih.gov/36997307
Parental perspectives of outcomes following very preterm birth: Seeing the good, not just the bad (Milette 2023)
pubmed.ncbi.nlm.nih.gov/36479723
Guilt and Regret Experienced by Parents of Children Born Extremely Preterm (Thivierge 2022)
pubmed.ncbi.nlm.nih.gov/36463935
Parental perspective on important health outcomes of extremely preterm infants (Jaworski 2022)
pubmed.ncbi.nlm.nih.gov/34815239
